Jess Banks schools you.

I’m sleeping pretty well, but I wake up exhausted every morning. This is Day 8 of a skull-crushing tension headache. Fears I’m forgetting something important plague me constantly. Activities that used to leave me with a two-hour adrenaline hangover now make me tired before I even start. My threshold for sensory overload is so low, I’m having small meltdowns several times a day. I stop taking phone calls. I avoid friends.

I am burned out.

I’m excellent at being the little cog in a big machine, but I need a solid sense of the macro to stay motivated. But lately, everything’s been so myopic that I can’t see my place in the larger efforts I’m working toward, and it hasn’t been good for me. I feel myself withdrawing, and I don’t like being powerless to stop it. It’s crunch time, and I’m more disengaged than ever.

I called a dear friend for a lunch date, to ask him how he’s dealt with the burnout that must have been familiar in his super-intense job over the last year. Just seeing him makes colors brighter, but I need his advice, so I asked him how he manages to stay fresh over the long haul.

Some of that advice is expected. You have to set boundaries and practice saying “no.” Be at home when you’re at home. Put away the cellphone and computer. Make yourself present for your loved ones, and don’t feel guilty when you do something you love that’s totally unrelated to the greater effort. Self-improvement can wait. Feed your soul. Rest.

Some of his advice triggers an instant inner eyeroll, but I try to take it to heart, since I’m at such a loss with my own efforts. At the end of the day, take the time to write down one thing you did well. Accept praise. Don’t let doubts or second guesses stick around. Self-talk feels artificial, but it registers somewhere deep inside our brains, so do it anyway.

I’m someone who has a negative, self-critical tape on endless replay at varying volumes in her mind all the time. These are difficult steps to imagine taking. I realize that part of what’s made me feel insignificant over the last several weeks is a lack of outside reinforcement for anything specific I do. I don’t know what I’m good at. It’s impossible for me to ask for praise, but I’m starving for it. Recognition by another human that your inner intentions and outer efforts are registering in the world is absolutely necessary. My friend holds my hands and tells me how much love he always senses pouring out of me toward every person I meet. I cry a little; I’m tearing up again now as I write this.

In the grand scheme of things, the fact that I’m feeling burned out at last after over 14 months of non-stop effort and tension is only surprising in that it took this long. We all go through cycles of intense focus, followed by necessary disengagement. Only the daily grind of steady work is unnatural in this process, and constant effort is unhealthy and untenable.

But if I want to relight the fire that burns inside me for the work that makes me valuable in the world, I have to do exactly what’s most difficult right now. I need to reach out to other people for that moment of human connection. I need to remember what I love about what I do, and let others see that. I need to ask for help seeing the Big Picture. I need to accept praise, even from myself. I need to make plans and dream dreams for what happens after this work is done. I need to keep creating, whether it’s adding just ten words on a writing project, or prepping my garden for planting, or baking cookies.  I need to let small joys accumulate.

Burnout is real and natural, but the solution isn’t smothering the fire. It turns out, the answer is letting others help you feed the flames.

Today is World Autism Awareness Day, but autistics and many concerned advocates have done a great job of rebranding it as Autism Acceptance Day/Month. What’s the difference, you may ask? To many neurodiverse people, “awareness” and “acceptance” are as far apart as “tolerance” and “equality.” We don’t want past and current generations of people who are differently wired than our neurotypical family and friends to just subsist on the fringes until a “cure” is found for those not yet diagnosed (or even born).

But many of those neurotypical allies don’t really know where to begin when faced with the complex spectrum of autism-related traits and patterns, and I know they’d be genuinely mortified if they grabbed the wrong end of the facts and proceeded as informed.

So here’s a very short, very subjective list of places you can go to experience some of the range and diversity of autism. If you’ve found something you feel should be on this list, please leave it in comments! I’m always on the lookout for new resources! And if you don’t know where something you’ve come across fits on the range of positive voices, please don’t feel embarrassed to ask–wanting to be informed is the first and most important step for any ally of any kind.

Filmography

The documentary Loving Lampposts, available on instant Netflix in at least the U.S., does an excellent job of approaching its autistic subjects with sensitivity and a willingness to truly hear their experiences. I especially appreciated that it included role models who are non-verbal, showing the brilliant thoughts that speech alone is incapable of capturing for them.

The only “fictional” movie I’ve seen that does a good job with autism is the HBO docudrama Temple Grandin (based on the real life of the autism pioneer), but two TV shows, Parenthood and Alphas, portray their autistic characters in ways that have made me gasp, laugh, and cry with recognition and gratitude. Many people cite the new BBC series Sherlock for the Asperger’s-like characteristics the title character shows, but given his other egomaniacal and insensitive traits, he’s not exactly what I’d call a role model, no matter how brilliant he is.

Bibliography

There’s a wide and diverse array of books out there about autism, but I’m only going to recommend the ones I’ve personally read. A few are fiction, but most are memoirs of one kind or another. It’s amazing to see your own life in print without having written a word. And in general, while autistics have found many ways to manage their symptoms and concurrent problems like food allergies or other medical issues, back away slowly from any book that talks about “preventing” or “curing” autism.

The Speed of Dark by Elizabeth Moon

The Curious Incident of the Dog in the Night-Time by Mark Haddon

Look Me In The Eye: My Life with Asperger’s by John Elder Robison (he’s written two more memoirs since, and I assume they’re just as good as his first)

The Journal of Best Practices: A Memoir of Marriage, Asperger Syndrome, and One Man’s Quest to Be a Better Husband by David Finch (he too has written successive books that I intend to get to in my Pile o’Shame)

If you only read one book on this list, read Loud Hands: Autistic People, Speaking, an anthology edited by Julia Bascom.

If you only read one author at all, read anything you can get by Dr. Temple Grandin.

Organizography (yes, I’m starting to make up words)

A great alternative to Autism Speaks, which is to be avoided at all costs, is the Autistic Self-Advocacy Network (ASAN). Co-founder Ari Ne’eman works on behalf of the org to bring cases of abuse and discrimination to public attention, as well as to make autistic voices heard in the room for discussions of policy and programs all the way up to the federal level. Their motto is “Nothing About Us, Without Us,” and their website is a great resource for allies as well as autistic folks.

Both national and local branches of Autism Society are also generally positive, though some may be more or less dominated by parents and teachers of autistics, rather than autistics themselves. That’s something to gauge on your own; if you don’t hear from an autistic person within a few meetings or press releases, that may not be a great sign.

Blogography (that one may or may not be a real word by now)

The number of excellent autistic bloggers out there is too numerous for me to do justice to, but you may want to start with a group on Facebook or Twitter like ASAN, Autism Women’s Network, WrongPlanet.net, or The Thinking Person’s Guide to Autism. They boost signal on blog posts and articles from a lot of great authors, not least among them are: Julia Bascom, Steve Silberman, Emily Willingham, Ibby Anderson-Grace, Shannon Des Roches Rosa, Estee Klar, and Lydia Brown. I know I’m forgetting a ton of good ones, so start friending/following the ones you like, and they’ll lead you to more and better, I’m certain. That’s how I got started at least.

Autism Speaks, I want to say that I won’t be lighting anything up blue in April. I won’t be donating money in any of the cans shaken by earnest coeds in shopping districts. I won’t wear a single piece of puzzle jewelry. I won’t be taking part in your walks, and neither will my son.

It’s too bad, really, Autism Speaks. Because my son and I are autistic, and we make fabulous spokespeople. Like many of our autistic brothers and sisters, we’re hyperlexic, so when we’re asked to speak, we do so way above our grade level. Our autism also gives us a natural enthusiasm, especially when asked to talk about the way the world looks to us, and we can describe clearly and concisely how our perceptions may differ from a neurotypical person’s.

The pink hair is not, sadly, part of my autism, but it is pretty awesome and it shows very well on camera. Too bad you won’t get any pictures of me participating in your orchestrations.

What I want to say to you, though, is very straightforward: I don’t need you to speak for me. I don’t need you to speak for my son.

Moreover, I don’t want you to. I don’t like the messages you send. By only having neurotypical board members, organizers, and spokespeople, you say autistics can’t speak for themselves and defuse the fear and confusion about life with autism.

By choosing a puzzle piece as your symbol, you suggest that autistics are incomplete or a mystery to be solved by someone else, instead of a pattern that is already intact and beautiful as it is.

By devoting a paltry four percent of your annual revenue to “Family Services” (that is, grants to families of autistics who need support for therapy and adaptive technology), you fail to help autistics right here and now.

The 44 percent of your revenue that goes toward research is almost solely dedicated to finding “a cure” for autism, preferably a prenatal test that would alert parents that their beautiful child will be wired differently than they expected. Your idea of a cure would solidify the public’s impression that autism is a life-ending curse.

And don’t even get me started on the fact that your fundraising, advertising, and administrative salaries exceed the percentage of revenue that goes both research and family services.

Instead of urging companies to “light it up blue,” why not ask them to train their employees on the nature of autism, and how best to help autistics who may be overwhelmed by the noise, light, crowds, and textures businesses use to entice neurotypical customers? Why not offer educational programs in the schools that give children the opportunity to see and question an adult autistic who thrives in their work and community? Why not raise money for respite care and better access to early intervention therapies that we know make a huge difference in the future success of autistic children?

The real quest of Autism Acceptance Month must be the quest to understand the beauty, complexity, challenge, and opportunity that autism brings. So keep your change in your pocket, and lace up your walking shoes to take the autistic kids of your family, friends, or neighbors out for a walk in the beautiful April air.

And most of all, let an autistic speak about autism. This may require listening very, very closely, or even reading texts or a chat program, because nonverbal autistics have important things to tell you too. Let them tell you about the flavors and textures and feelings that, while wildly overwhelming sometimes, are also rich and delightful. Let them tell you about what color the world is. Let them perseverate about their favorite things. Let them tell you how much they love you, in whatever way works for them.

That’s how autism really speaks.

Because it is my highest aspiration to be a troublemaker, I’m setting out today to problematize something we all take for granted. I want to argue that the gendering of parenthood does very little good, and no small amount of harm.

This post springboards off posts by Amanda Valentine and me about the media portrayals of men and fathers as bumbling, hapless idiots who are as likely to diaper the Thanksgiving turkey and put the baby in the oven as watch the football game afterward. It also relates directly to the historic cases about same-sex marriage before the Supreme Court this week.

My point is very simple: there is very little difference between the duties my husband and I assume with regard to our children. And since the earliest days–specifically, since I stopped breastfeeding them–the differences in parenting caused by our genders have been vanishingly small.

As parents, we make sure they wash, dress, eat reasonably well (at least over the course of a week, if not each and every day). We send them to school, help with homework, take the inevitable phone calls that come from sending two active, intelligent boys to school every day. We monitor their media, we break up arguments, we cause arguments, and at the end of the day, we tuck them in at night with kisses and dire warnings against getting out of bed again for anything short of a fire.

Absolutely none of these things, or the billion other duties and blessings that comprise parenthood, depend on our biology.

The division of labor that takes place between modern co-parents comes from the frank assessment of one another’s particular strengths and struggles. I crack the whip over homework and science fair projects because I am an educator, not because I am a woman. My Darling Husband does more of the day-to-day housework because I am disabled, not because he is a man. Nor does this indicate I am a failure as a wife and mother, or that he is a weakened, hen-pecked husband and father. Someday, our boys will require The Talk (or to be more correct, The Talks); I honestly have no idea who’s going to give it. I hear the DH has a leg up on me in the visual aids department.

In one of the early hearings on the same-sex marriage bill currently under consideration here in Minnesota, the measure’s opponents brought out an 11-year-old girl to testify against the idea of marriage equality. (You may have also seen her on the steps of the Supreme Court this week; she’s one of their star witnesses right now.) She told the legislators that she loved her mommy and daddy, but that under this bill, some children wouldn’t have a mommy or a daddy, but two of one. “Which parent do I not need, my mom or my dad?” she asked the committee.

And I finally understood why fighting same-sex marriage matters so much to many of its fiercest opponents.

In their world, mothers and fathers do different things for the children. Fathers can’t do mothering, and mothers can’t do fathering. If a single mom or a pair of dads raises a child, there is work being left undone, and the child can’t help but suffer for it. How could anyone possibly be in favor of only half an upbringing?

The gendering of parenthood not only diminishes the power of what parents of both sexes do for their children everyday, but it also confuses the living heck out of some people. When you see signs decrying the erosion of “traditional marriage,” they’re not just talking about divorce and same-sex couples–they mean me and my oh-so-traditional marriage, too.

Even though I’m married to a spouse of the opposite gender, we’re destroying traditional marriage too, by sharing the work–the hardships, the effort, the joys, the rewards–of creating a new family. We’re also undermining the institution by teaching our children (made in the traditional “When a mommy and a daddy love each other very much…” biological way) that moms and dads cook dinner, attend school conferences, travel for work, and tell them to turn off the iPod at bedtime. For the most part, we’re interchangeable.

And our evil scheme is clearly working. They accept their friends with two moms, or one mom, or a dad and a grandma without so much as a bat of the eye. If I had a dime for every time they called the wrong one of us “Mom” or “Dad,” we could afford a bigger apartment. To them, “Mom” and “Dad” are just names to help differentiate between whose attention they’re demanding. It’d probably be easier on us all if there were a random name for “Whichever of you can help me first with what I want.”

My sons are growing up healthy and happy with two loving parents. They’d be no less loved if only one of us were around, or if we were both the same gender, or no gender at all. That’s not how love works–it’s not a zero-sum game.

And when you think of it like that, it’s pretty hard to see two loving, married parents eroding anything about our future.

It’s been a bad week in the media for people sensitive to trigger issues. Rape, consent, racism, intolerance, and general lack of humanheartedness abound, and with them the traveling herds of trolls who flock to such ripe feeding grounds from their mountain bridges.

In my assumed role as a sherpa through the treacherous territory of social sensitivity and awareness of others’ boundaries, I’m offering this Friday Night List. If you feel a “but” coming on at the end of these sentences, do not say whatever you were about to–you’ll only end up making someone mad.

SENTENCES THAT OFTEN DO, BUT SHOULD NOT, HAVE ANY MORE WORDS AFTER THEM

(No Buts About It.)

“I’m not a racist.”

“We can all agree that bullying is never okay.”

“I’m not trying to be insulting.”

“Rape is rape.”

“We shouldn’t make light of a serious crime.”

“That looks great.”

“I appreciate your hard work.”

“Maybe I shouldn’t say this out loud.”

“No offense.”

“I wasn’t supposed to tell anyone.”

“Hey, baby.”

“I’m sure this was your best effort.”

“You have a wonderful, energetic child.”

“It’s not my cup of tea.”

“I understand you’re strapped for cash.”

“That must be hard for you.”

“I can’t imagine what it’s like to be you.”

“I appreciate how busy you are.”

“I don’t want to cross any boundaries.”

“Hitler/Idi Amin/Chairman Mao/Darth Vader was a bad man.”

“You may not want to hear this.”

“I shouldn’t have to say this.”

A week or so ago, I had a Brilliant Plan (TM). We’re making arrangements to take the whole family, our two sons included, to Origins this year. I’m beyond excited, but there’s a lot of apprehension there too. It’ll be the boys’ first con, and the first one I’ve been able to attend in several years.

It’ll also be the first con I’ve attended since I’ve known about my autism, and I expect that to be a revelation on a number of different fronts. I’ll be more attentive to the waves of sensory info coming in, and more patient with my preoccupation with the textures and graphic design of the costumes and games I see. I’ll understand why the exhibit hall and the crowded hallways between events take such a toll on my patience and energy. I’ll be more aware of how my autism affects my user experience of new systems and products. And I’ll be more mindful of how the chaos of the con environment uses up my available energy, focus, and physical reserves.

In the past, if I needed a sensory break from the crowds and chaos of large gaming rooms and the overwhelming stimuli of the exhibit hall, I had to schlep all the way back to my hotel room. Once there, the odds of actually returning diminish rapidly. When I finally stop moving so much, the tidal wave of pain and sensation I’ve been holding at bay swamps me, and I realize how much I’m hurting and tired. I can’t even think of going back to the convention center until I’ve had significant rest after that. It hurts to miss valuable time with friends I don’t see the rest of the year, but it hurts more to keep moving, to keep fighting my environment.

This year, I’m trying to do something about this. I’ve submitted proposals to both Origins and Gen Con–the two conventions I’m planning to attend this year–to establish a Sensory Break Room for people who are physically or mentally challenged by the rigorous environment of the con.

Part of this is wholly selfish. I don’t want to have to leave the convention center when (not if) my son needs a sensory break. I don’t want to have to go all the way back to our hotel room, where I know I’ll have fights over whether and when we go back, and why we don’t just stay and play XBox or something just between ourselves. He’ll be anxious and overwhelmed, literally by the amount of fun and multitude of choices available. And I don’t want to fight about whether we spend time at the place we came to spend time at.

The other part is more generous. If people like my son and I could really benefit from a room near the center of action where we can decompress for a few minutes, thereby gaining a few hours more of “on” time, I know we’re not the only ones who could use it. As people become more aware of neurodiversity, true introversion, and other conditions that make con activities challenging, it seems like the next logical step for adaptive services is to offer a nearby room where folks can go to recharge their batteries. Much as there are now nursing rooms available for moms who take their babies to cons, I think sensory break rooms are the future of necessary accessibility options for con attendees.

But what do I mean by a “sensory break room”? Let me do the negative definition before the positive one. It won’t be a hangout for people who just need a seat. It won’t be a quiet place to play quiet games. It won’t be a craft room for game widow(er)s looking for company. It won’t be a nursing or babysitting room.

The room will be screened off, instead of requiring users to open and close a clanky door. The lights will be kept quite low, probably too low to read properly, but there may be some soft, shifting colored lights to focus on. No music or other noise will be permitted, but a small fan or ionizer will run to provide white noise as an auditory buffer. Nobody will bug anyone else, but neither is it a nap room. If someone falls asleep, the monitor will wake them up after five or ten minutes, and each user will be responsible if they accidentally sleep through an event they’re supposed to attend. I’m hoping that the folks most likely to use it will be generous in bringing some adaptive tools to share–weighted blankets, exercise balls, fidgets, and other comforting objects. 

There won’t be a cost to use this space–I would no sooner charge for access to a wheelchair ramp than I would for access to this room–and its primary function will be as a room to decompress. Even just 15 minutes for most people gets them back another 2 to 3 hours of time to participate in con activities. The importance of this downtime cannot be overstated for making it a successful event for a significant number of people.

I’ve had a very good response from folks on Twitter, Facebook, and Google+, and I’m hoping that enough positive pressure on the Origins and Gen Con organizers can help us achieve a pilot test for this resource. I’m trying to figure out whether it’s possible to get enough con-goers to volunteer for a shift monitoring the room while it’s open (probably 10am-6pm Thursday thru Saturday), or whether I should see if I can get the local Autism Societies to get a few folks who would be willing to work a two-hour shift each day in exchange for a four-day badge. Either way, I’m also trying to pull together some of the best game designers/GMs in the industry to run “reward games” for the folks who put in the time to make this resource work well.

Think about that look–you know the one–when you see someone about ready to meltdown in the middle of the dealer hall, or at a game table in a deafening room of other game tables. No, grownups don’t throw temper tantrums the way kids do, but you can see the tightening in their shoulders, their jaws. Their eyes get wide, flash around to scan the room for exits and clocks to tell when they get to escape. They get snippy, impatient, or they shut down entirely: “My character just goes along with everybody else.”

There’s a way to avoid that happening quite so often. A room to decompress in, to take that break from the light and noise and sights and crowds, can stave off those sudden attacks. There are still kinks and details in the plan to work out, but I hope it sounds like a good idea to enough people that we can start to leverage some positive pressure on the con organizers. Whether or not you’re going, please communicate to Origins and Gen Con organizers that you think that this resource is valuable and worth accommodating in the outskirts of the main convention area.

Sometimes you have to break to get put back together. This year, we can provide a safe space for our fellow gamers to do that.

I know the Internet is designed to inspire fury. That hasn’t been the majority of my experience with it, but lately, it seems determined to correct my underestimation of its rage-inducing qualities.

So before I proceed with this post, please go read this article about why Mattel thinks moms don’t “get” toy cars. Go ahead–I’ll wait for you.

Thanks for taking the time to do that. You may or may not be seething with anger right now. If you’re not, that’s okay, but I’m going to explain why I (and several other mothers I know) are. Let me put on my sherpa hat.

PROBLEM #1: THERE’S A VP AT MATTEL FOR “BOYS’ TOYS AND GAMES.” I’m the mother of two boys, and I’ll be the first to say that they play with different toys, in different ways, than many girls would. Griffin was about nine months old when he distinctly said “Vroom” to a squishy car toy which none of us had yet bothered to introduce to him by name or sound.

But I’ve been told I “play wrong” for a girl since I was two years old. Imagine that: TWO YEARS OLD. That’s the year I saw Star Wars on a drive-in movie screen and was hooked for life. All my friends in preschool were boys, because they would play what I wanted to. In sixth grade, my teacher introduced me to games of war and strategy, and I was hooked once again. I went on to be the only girl among 23 boys in the Strategy and Tactics Club in high school, and I was very happy there. I never felt left out or isolated because I was doing what came naturally to me.

Even as an adult, I’ve mainly played games with men, but the many women gamers I’ve played with over the years were as viciously cutthroat as they needed to be to succeed. If anything, we were more terrifying because we collaborated to do awful things, and we needed to set down our needlework or knitting to wipe out whole parties of monsters or even the roof of a building once. “Knit one, purl one…natural 20…I kill it. A lot.”

There’s no such thing as “boys’ toys” and “girls’ toys.” There are just boys and girls who play with toys. Whichever ones they pick, they’re doing it right. It’s okay to appeal to some of the differences between the genders, but the pink-and-blue-washing needs to stop NOW. If you want to see how a company can tailor toys for greater appeal and accessibility to one gender or another, consider the upcoming “girls’ line” of Nerf toys, which feature ergonomic adjustments to make them easier to use, as well as styles that correspond to popular culture models like Katniss and Merida. Disney should follow their advice with the Marvel line–I know a whole lot of girls and women who will happily fork over for some good Marvel toys, games, and apparel.

PROBLEM #2: HE FELT THE NEED TO EXPLAIN TO A ROOM FULL OF MOTHERS WHY THEY WERE DOING THEIR JOB WRONG. There are many ways mothers do do their jobs wrong, and society isn’t shy about telling us so. We know we’re not perfect, but unless you’re the sort of mom who’s likely to end up in court, you’re trying very hard to do your best. The days of the pretty moms who won’t lie down on the floor in their crinolines and frilly aprons to play with kids of both genders are past. I play with my boys, and I play hard. I certainly don’t need a toy executive to tell me how to make my kids happy or have a good time.

Moms are bad enough on themselves and each other. Tiger Moms, Princess Moms, Geek Moms, Stay-At-Home Moms, Working Moms…we’re all being told we’re doing it wrong, that our kids will end up in therapy for sure if we don’t buy them the right things and hover over them like paranoid black helicopters every second of the day. Petersen’s voice shouldn’t be in this discussion at all, let alone lecturing a room full of “mommy bloggers,” whatever the hell that sexist, reductive label means.

PROBLEM #3: HE THINKS THERE’S ONLY ONE WAY TO PLAY WITH TOY CARS. This one particularly burns my ass, because I know from experience that he’s wrong. When I was a kid, I played with toy cars by lining them up in perfectly symmetrical, parallel rows, sorted by shape, size, and color. Then my sister would walk through the lines like Godzilla, kicking them to kingdom come. And then I would line them up again in different patterns. I picked my favorites by the way they felt in my palm, my closed fist.

I realize that much of this comes from my autism. But I know I’m not the only one who didn’t play smash ‘n crash all the time. In fact, most of the boys I knew didn’t play with their favorite cars at all–they set them on a high shelf where they’d be safe and beautiful. Petersen’s model of play is a marketer’s one, not a player’s one. If you smash your cars all the time, your parents have to buy you new ones all the time. Planned obsolescence is not a game.

PROBLEM #4: HE DOESN’T UNDERSTAND WHY KIDS WOULD RATHER PLAY WITH OTHER TOYS. Finally, Petersen doesn’t understand why toy cars are less relevant today. The problem lies in a few areas. If a kid wants to pretend with cars these days, why would you want to drive a four-inch replica across the berber carpet when you can boot up the XBox or Playstation or 3DS and actually feel like you’re driving a real car? Why play with a pre-made car when you can build your own models?

Cars have the same problem I see occasionally with “action playsets”: they’re single-use toys. There are only so many ways you can play with a toy car, or with the Spiderman 3 Sandstorm Action Playset. You basically get to recreate one storyline, and then you’re done. The reason action figures and dolls are more popular is because you can tell infinite stories with them. An imaginative kid (i.e., all of them) doesn’t even need every action figure, because one character can be many characters. LEGO offers another solution to this problem by offering single-use builds with infinite rebuilding potential. Who wouldn’t rather play any story you can think of, rather than “They drive somewhere. Along the way, they crash into something”? According to child development expert Penny Holland, single-purpose toys are far more damaging to our kids’ minds than toy guns. Think about that for a second.

The graph in the Bloomberg article suggests an even more interesting quandary to consider: There’s a gender gap in board games too. According to their statistics, 46 percent of girls between ages 6 and 12 list board games as their favorite toy, as opposed to only 33 percent of boys. I’d be interested to know which games girls are playing, because we’re past the days of the Barbie Dreamdate Board Game (which I played, I’ll have you know, and ended up marrying Poindexter in real life). 

Board games aren’t even strongly marketed, as far as I can tell, for one gender or another. RPGs (tabletop, video, and online) are, though, and I’d be interested to see a more nuanced breakdown of a wider variety of games. I’d also like to know whether the gender gap among young girls and boys who play board games correlates to the education gap–there may be room for board games to help boys catch up on certain academic and social skills that they aren’t getting enough support for in schools that have to teach to the test.

All this fury has direction. We don’t have to settle for executives trying to sell our kids crappy toys. We know what our kids like, and we should put our money where their preferences are. Play has the capacity to teach and to heal, as well as to entertain. As parents, we shouldn’t settle for anything less.

Friday is the Autistic Day of Mourning, a day to honor the autistic people who have lost their lives to the desperate or careless actions of parents and guardians, or to the crushing weight of the sensory world that seems inescapable by any other means but death.

As long as myths and misinformation are spread about what life on the autism spectrum is like, there will continue to be caretakers who feel that autistics are less than human, and autistics who feel that every door in the world is shut and locked against them. This is my story of those doors and locks, and the keys that turn up in the most unexpected of places.

I wrote this for an event around Mothers’ Day, called Listen To Your Mother. (It may have been too weird for them.) But I really wanted to share these words I’ve crafted, and the occasion to commemorate those who never found their keys seemed fitting. I hope it unlocks something for you, too.

________

Parenthood is all doors and windows, keys and locks. Change blows them open and slams them shut. Heat and grief swell the frames so they stick stubbornly. Time and anger jam the pins and squeak the hinges. Then suddenly, a word, a fall, a breakthrough, and we stumble over the threshold.

My son’s autism diagnosis was the key to a lock I didn’t even know existed. Kindergarten was rough, rougher than it needed to be. Connor talked as fast as he thought, ideas rushing out so fast his little mouth garbled and stammered over the vocabulary of a high schooler. He knew the names and origins of every superhero and Star Wars character, but related them with so much detail, kids his age gave up and walked away. He struggled to function in the constant noise and color of the classroom, where he could never settle and instead slingshotted among activities and classmates.

The other kindergartners didn’t understand, and responded with cruelty beyond comprehension. Five-year-olds on the bus home at half-day told him they would beat him like a piñata until he broke open. They said they would come into his room and set his bed on fire. They hit him in the face with ice balls until he needed stitches. And I cried as I scrubbed the blood out of his little winter coat, as I held him in the night after dreams that woke him screaming. As I filed the papers to transfer him to somewhere safer.

We got called to a meeting within the first month at his new school. “We’ve noticed some things we’d like to talk to you about,” the counselor said. We feared a repeat of the last school’s message: “Your son is a discipline problem. Fix that.” But in that room with his teacher and a staff we barely knew, they slid a list across the table to us that told the story of our son.

My husband and I laughed. Out loud. It startled the school folks to see parents erupt in gales of hilarity and recognition at an inventory of symptoms. But there it was, clear as day on that paper: every strange, wonderful, frustrating, inexplicable thing that our son did. “It’s okay,” we tried to reassure them. “This is the Book of Connor, the pattern we couldn’t figure out. Until now, we thought it was crap parenting.”

It has a name, they told us: Asperger’s Syndrome. “How wonderful,” we replied. “If it has a name, it’s a language we can learn.” We shook their hands, agreed to meet again soon to talk about how to help him. We thanked them, over and over. “Thank you for giving us the key to unlock our son.” I went to the library, checked out armloads of books, and built a fortress around myself, so I could read us all out of the dark.

But the key we had fit another lock, too. It fit a lock in me, a lock I didn’t know I had. His patterns were my patterns, or had been as a child before I learned to hide or work around them. I saw the world in stories too, and had visions clearer than eyesight from the books where I went to hide. I fixated on things without even trying or wanting to. And when it was too much, only dark and quiet and heavy blankets and the rushing, patternless sound of a fan could steady me on the tightrope again.

His lock, my lock, they’re the same. My son is autistic. I am autistic. We are both autistic together. We share this key, and we’re unlocking doors I never dreamed I would pass down to my child.

Grownups say they wish they knew then what they know now. They have no idea.

My son’s lock is my lock. His key is my key. Every door it opens, it opens for him and me. And I walk that terrible, glorious road of discovery with him again like it’s the first time for us both.

A few times recently, friends have mentioned me on social media as a feminist they admire. As pleased and flattered as that makes me feel, I also get a strong twinge of guilt, or at least conflict.

I don’t think I’m a very good feminist. By the usual standards, I barely qualify for the title. I suffered through one lone Women’s Studies course, in grad school, with much whining and skepticism by both professor and me. I don’t know all the lingo. I can’t take the Pill. You’ll never catch me burning my bra–they were so damn hard to get fitted correctly in the first place.

Okay, that list is pretty unserious, at least in 2013. But I do feel some considerable shame as emails about reproductive choice, equal pay, sexual harassment, gender balance in the media, and any number of other “feminist issues” pile up unanswered in my inbox while I put in hours upon hours on the phone and in the Capitol for rights that may not even benefit me directly.

I want to be worth the faith of those folks who think of me when they hear the word “feminism,” and I want my feminism to be clear in its intent. My feminism sits at the intersection of race and privilege, of sexual and gender identity, of educational and economic advantage, of communication and culture. My feminism is a human right, and it casts a broad net: I become aware of another injustice that touches my feminism because I feel the tug on our common lines, however far away from me it is.

But if your feminism extends so far, what kind of feminism is it at all, you may be asking? If you can find your way, as I do, to issues as diverse as same-sex marriage, teaching multiculturalism, comprehensive health care, rape culture, and the environment, shouldn’t I call it something else? Is my gender the only thing that makes me a feminist?

My answer is no. Women deserve to have their whole voices to be heard. We are more than half of the world population, so if there’s an issue that affects the world, it affects women and we deserve to have a say in it. Women are not a monolith–this gets said frequently, but it bears repeating until it sinks in. We do not all have the same view on issues; there is no such thing as the “women’s vote.” Our circumstances are varied as our bodies.

That said, the common composition and experience women share give us a different perspective than men have, and if we want to build the world to be a more inclusive place for us, our vision has to influence that construction. A quick anecdotal example: My boys were born four years apart. We still had all the baby equipment from Connor when Griffin was on his way, but by way of a mistake and a generous gift, we ended up with a brand-new stroller set to replace our used one. I finished unpacking it and went to set it up for maximum admiration. Remembering the mechanics of our old set, I went at the frame with both hands, but all it took was a flick of my thumb and a twist of the wrist, and it sprang up fully. Instantly, I realized: in those four years, women engineers entered the design room. I’m not saying that men couldn’t design a good stroller. But it felt like a mom who’d wrestled a purse, a crying baby, and a diaper bag spilling its contents into the parking lot had finally had a say in what was needed.

Not every woman is a mom, or even wants to be one. Not every woman will even need that stroller, let alone be able to afford it. Not every woman can even imagine the luxury of letting something other than her hardworking body support the weight of her child for a single moment of the time until that child can toddle along under its own power. And increasingly, many men are partners in parenting who can appreciate one-touch strollers and other magical technology that makes the work of raising a child just a bit easier.

But women experience the world differently than men, and that difference makes us valuable as we search for solutions. Every problem in the world affects women, and we can and should contribute to efforts to counteract problems with our particular set of visions and skills. Strengthening the institution of marriage by making it accessible to anyone who will take that stand for love and commitment benefits women. Teaching multiculturalism to children (and adults) makes us more sensitive and appreciative of the differences, unique histories, and commonalities among people with other races and cultures, which benefits women. Comprehensive health care benefits women’s bodies, as well as improving their ability to participate fully in the economy, to the benefit of their families. And we all live on this planet that changes and suffers and recovers and goes unheeded, like the bodies of too many women who experience the world as a violent place, and they all need healing for life to flourish.

So my feminism will be intersectional. Senator Paul Wellstone used to say, “We all do better when we all do better.” So I’ll work on the issues that resonate with me and my experience as a mom, a wife, a teacher, a bisexual, a pagan, an autistic, a Unitarian Universalist, a white person, a survivor, and the many other people who live inside this woman’s body. One of them is a feminist.

I tell stories all the time. I’m no good at plot, though, so the stories I tell are almost always from my own life. And because my memories are so vivid, I enjoy coloring in the details and senses so the listeners can feel like they were there too. I’m also a total ham, and I love making people laugh, so you’ll get no quiet recitation of facts–if I’m telling a story, there are wild gestures, silly voices, dramatic pauses, and rhetorical flourishes.

I don’t have much of a filter, so there aren’t many stories from my life that I haven’t told to somebody at some time. And much of the activist work I’ve been involved in over the last year, especially on marriage equality and improving access to healthcare, has revolved around the power of personal stories to move people to connect with their own stories and act on common values.

Some stories, I’ve told literally hundreds of times, like how I met and married my husband. Others, I’ve had to grow into telling over the years, and I only pull them out when there’s an important point to be made.

All these stories, they’re pieces in the mosaic of me, and I’m content with that pattern.

But I don’t expect them to change on me, especially those whose roots lay decades in my past. Yet that’s what happened last night, and I’m still reeling from how a shift in perspective can alter a story I thought I knew by heart.

I attended a community meeting about the state anti-bullying legislation I’m working to get passed into law this legislative session. It was a bit of a drive for a Tuesday night, but I’m keenly interested to see the diverse and passionate coalition we can build around the need for stronger protections for all our kids. The meeting took place in the heart of the Anoka-Hennepin School District, where the lack of clear anti-discrimination policy can be measured in young lives lost.

After a breakdown of the legislation and the likely timeline through the Capitol, we did a mini-workshop on telling compelling, personal stories about why a better anti-bullying law matters to us. Before sharing a quick story with another attendee, each of us took a minute to scratch notes on a worksheet of prompts about our own experience with bullying, the values and emotions those experiences evoke, and why now is the time to fix this.

I’ve talked about my older son’s horrific experience of bullying in kindergarten before, and when I’m asked why I’m so engaged on this issue, that’s the story I tell. Sometimes, I talk about the friends who were beaten up and harassed in high school for their appearance and what it supposedly said about their sexuality. Obviously, though, the anguish and devastation of a mother who can’t protect her son when the school wouldn’t act is far more effective than secondhand memories from 20 years ago.

But because we’ve been dissecting the language of what constitutes bullying and harassment on such a minute level, the question “Were you ever bullied?” tripped a different wire last night than it ever has before.

I don’t go around broadcasting the fact that I’m a sexual assault survivor, but I’m not shy about sharing that when it can bridge a space that isolates someone who feels alone in his or her similar experience. What I share less frequently is that my assaults were the culmination of a ten-month abusive relationship–textbook, really, with repeated passes through honeymoon, deterioration, confrontation, and alienation, before the pattern repeated once again.

Because this was a high school relationship, and my abuser was in many of the same classes and activities I was, a major portion of the drama unfolded on school property. To my older and better trained eye, I can now see the stalking and harassing behaviors that I just accepted as either romance or punishment. Following between classes. Cornering for long talks at my locker, in a practice room, under a staircase. Blocking me from leaving those spaces until he’d had his say. Physically threatening behavior. Physical abuse. Telling lies to turn friends and teachers against me.

I was harassed for almost an entire academic year, and not a single school official once stepped in.

I don’t blame anyone for this, in large part because I know that the people who were concerned were actively misled by my abuser, and I’d been convinced I deserved what was happening. But I am suddenly, acutely, aware that if a clear policy had been in place that defined bullying and harassment, supported by training for teachers and staff on how to recognize and intervene, that relationship would never have gone on for ten months. I wouldn’t have been isolated and stalked. And ultimately, I wouldn’t have been raped, because the whole pattern would’ve been stopped before it escalated to that ultimate violation.

When I first told my parents I was raped, almost three years after it happened, my dad set up a meeting for me with one of his grad students who was also a survivor. She showed me a piece of blank paper, and said, “You see this paper? Like this, it takes up almost all of your field of vision. This is your rape, right now.” She folded it in half, and then half again, saying, “Time does this to your experience. It makes it smaller, bit by bit. Therapy helps, but time does most of the work. And eventually,” the paper was just a small, thick square now, “it’ll be so small, you can tuck it the furthest corner of your pocket and almost forget about it. It’ll always be there, but you won’t have to take it out until you want to.”

I’ve taken out that experience, unfolded it from the tiny corner where it resides, for many reasons–sometimes, just to reassure myself that I can fold it back up and shove it out of sight whenever I want. But my realization that I do have a personal experience of bullying and harassment feels like that paper suddenly has a message written on it, one that I’ve never seen before because I haven’t really spread and smoothed the whole experience out for examination in such a very long time. And though it doesn’t make sense, it feels like the paper won’t fold back up again quite the same way, or quite as small again for a long time, now that I’ve seen that writing.